The heartbreaking news of young Damir Ortiz's passing has deeply affected the Cuban community both on the island and abroad. Social media has been flooded with messages of grief, disbelief, and solidarity for the boy's family, whose story has touched many hearts. At just ten years old, Damir became a symbol of resilience, tenderness, and unity among Cubans worldwide who rallied to support him during his illness. His departure has triggered a wave of reactions online, where friends, family, activists, and strangers have shared their sorrow over such an irreplaceable loss.
One of the most prominent voices has been that of activist Lara Crofs, who closely followed the case and expressed her indignation and sorrow on Facebook: "They turned a 10-year-old into a martyr! We will not forget. The pain, anger, and frustration we feel are matched by our desire for Justice and Freedom." Clearly moved, Crofs also urged for "space, respect, and immense solidarity for Eliannis (Damir's mother). It is a profoundly difficult time for something we knew could have been prevented." Her call has been echoed by many users demanding justice and empathy for a mother shattered by grief.
The arts have also reflected the suffering. Cuban rapper Omar Mena paid tribute to Damir with deeply moving verses that have touched thousands: "Fly high and may the clouds be made of candy, mom's love cradles you in heaven. May there be many toys for you to see; living is more than just life; you leave us with no consolation. We trust you'll bring a bit of light to the moon; your life was short but filled with love. Grow stronger, child, across the globe."
Many have shared emotional images and words to remember the young boy. "An angel gone too soon," "fly high, Damir," are among the sentiments filling platforms like Facebook. Cuban community groups, both on the island and in exile, have called for solidarity and respect for the grieving family and friends.
Currently, further details are awaited from the family or close friends about funeral arrangements or farewell events. Damir Ortiz, only ten years old, faced numerous health challenges from a young age. He was diagnosed with neurofibromatosis type 1, a genetic disorder leading to tumor growth in the nervous system.
This condition resulted in a plexiform neurofibroma in his right eye, affecting his vision and causing severe ocular inflammation. He was also diagnosed with acute leukemia and suffered kidney damage, significantly impacting his quality of life. On March 12, Damir was transferred to Nicklaus Children's Hospital in Miami, after overcoming bureaucratic hurdles from Cuba's Ministry of Public Health (MINSAP), which initially refused to provide the necessary documentation for a humanitarian visa, claiming the island had the resources to treat him.
Upon arrival, U.S. doctors dismissed the Burkitt leukemia diagnosis given in Cuba, highlighting errors in previous medical care. At 5:00 a.m. on Saturday, April 5, Damir passed away at Nicklaus Children's Hospital. The news was confirmed by activist Diasniurka Salcedo Verdecia, who stated: "Our warrior resting with the Lord! Words cannot describe such pain."
Key Questions About Damir Ortiz's Case
What was Damir Ortiz's condition?
Damir Ortiz was diagnosed with neurofibromatosis type 1, which caused tumors to grow in his nervous system. He also faced a misdiagnosis of Burkitt leukemia in Cuba, which was later corrected in the United States.
How did the Cuban government initially respond to Damir's case?
Cuba's Ministry of Public Health initially refused to provide the necessary documentation for a humanitarian visa, claiming they had the resources to treat Damir on the island.
Who confirmed Damir Ortiz's passing?
Activist Diasniurka Salcedo Verdecia confirmed Damir Ortiz's death, expressing profound sorrow over the loss.