A ray of hope has emerged for Ester Lianet Asprón Rey, the two-year-old girl battling hydrocephalus in Cuba. Her father posted an emotional video thanking everyone who made it possible for her to receive the ventricular shunt valve that will save her life.
He shared that the family has received tremendous support from the Cuban community, both on and off the island, through donations of money, medications, and finally, the long-awaited valve. This case, which has gone viral on social media, has touched the hearts of thousands of Cubans and people abroad who came together to help the family obtain this vital medical supply, nearly impossible to secure in Cuba’s critical healthcare system.
Community Support and Activism
Activist Nelson Álvarez, known as “El Porfiao,” has led this solidarity campaign and was the one who shared the father's video, highlighting the collective effort that made this achievement possible. On his social media, Álvarez expressed: “It is our duty and our purpose, not only mine but also ADA Fraternidad’s, and primarily those anonymous heroes and heroines who are the true protagonists, our followers.”
Álvarez also provided an update on the girl's condition, indicating that Ester's surgery did not occur on Wednesday because her potassium levels were not as they should be. If stabilized by Thursday, she will proceed to the operating room.
The valve is now available, but the fight is far from over. This little warrior must now endure complex surgery and a lengthy recovery process. The support campaign for Ester began weeks ago and went viral following an urgent appeal to the Minister of Public Health, demanding state intervention to secure the valve.
This case highlights the crisis in the Cuban healthcare system, where essential medical supplies are often lacking for patients. Ester Lianet underwent six previous surgeries due to the absence of the valve, constantly risking infection with an exposed tube for draining cerebrospinal fluid.
Now, Ester is closer to receiving the surgery that will start her recovery process. Nelson Álvarez has reiterated the importance of continuing to support this family for a while longer. For those wishing to help, the following bank accounts are available:
CUP: 9205959879504109
MLC: 9235959873600758
Phone for confirmation: 52523871
Additionally, the GoFundMe campaign remains active, where donations can be made to support the family through this process. Ester Lianet's story is a reminder of the power of solidarity in times of need and how, amid extreme difficulties, collective effort can mean the difference between life and death.
FAQs about Ester Lianet's Condition and Support
Here are some frequently asked questions about Ester Lianet's condition and how people can continue to support her and her family during this challenging time.
What is hydrocephalus?
Hydrocephalus is a condition in which excess cerebrospinal fluid builds up within the ventricles of the brain, causing increased pressure. It can be life-threatening if not treated properly.
How can I donate to help Ester Lianet?
Donations can be made through the provided bank accounts (CUP: 9205959879504109, MLC: 9235959873600758) or via the GoFundMe campaign, details of which can be found on social media platforms.
Who is Nelson Álvarez?
Nelson Álvarez, also known as “El Porfiao,” is an activist who has led the campaign to secure medical supplies and support for Ester Lianet and her family.